Dear readers, thanks for stopping by and reading my blog.
I was thinking about something to share with you and I came up with my recent appointment with my neuro. Navigating through the rapids of our neuro’s isn’t easy. Just a couple of days ago I visited my doctor ‘s office for a check up, and since I’m not doing well I figured, hmmm “He’s sending me to the hospital to get some Gamma and get me back on track.”, like usual.
Well, it didn’t happen.
I had all my stuff packed and ready for my seven day stay at the “Resort and Spa” a/k/a Bellavista Hospital , as we Puerto Ricans say I was all set for “Maleta and go”, which means I was up and ready to face whatever it is I needed to do.
Nevertheless, he wasn’t going down that path, not at least this time around.
He decided to travel towards the Mestinon Extended Lane, leaving my Prednisone dose a bit towards the high end. Oh, and let me not forget that we talked about getting my thymus tissue removed.
The point I’m trying to make (and probably one you’ll share with me) is that getting on and off this roller coaster called Myasthenia is a hell of a thing. There are so many twists and turns that it’s almost impossible to land in one piece without experiencing the scare of your life.
I don’t know how long I can stay away from my next Gamma, but as of right now I’m grateful I’m home and not admitted in isolation in a nearby clinic.
The dice are rolled each time we come across a crisis and there is not much we can do about it. However, the important thing for me is being able to calmly (I usually do the opposite) explore all my choices because at the end of the day those are the choices that count.
Ultimately, we are the ones who decide if we are “maleta and go” ready or if we need a bit more time to adjust and move forward with whatever it is we need to do. Nobody can take that away from us.
And remember to always be kind to yourself and move forward even if we can only take baby steps and I’m not talking in figurative language.