MG Survival Guide

Dear readers,  summer in New York came and went, school began and I got caught in my day to day life routine until September 20th.

September 20th was the day that a category five hurricane hit Puerto Rico, becoming one of the deadliest storms in modern history.

All of you know as a fact that stress is an overall factor that causes exacerbation of our symptoms.

I asked myself,  how do I remain calm in the midst of a category 5 hurricane?

After watching the last forecast report at five where the meteorologist stated that it wasn’t about securing your home anymore, it was about saving  lives.

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WOW!!!!

Still I was able to remain calm, trying my best not to stress myself because I knew I was going to feel sick.  The dull feeling that creeps up on me each time my weakness decides to show up was calling  in absent.

As Maria crossed our Island  I prayed.  Reaching out to my faith helped me overcome the moment.  All I wanted was it to be over, little did I know that it would remain with its furious winds and waterfall for more than twenty-five hours.  When at last it subdued on the night between the 21st and 22nd I was grateful.

If your waiting for things I did or bought in preparation, sorry to disappoint you but this post isn’t about this.  My survival guide is quite simple, just have enough medications, have a way to contact your neurologist and remain as calm as you can because you definitely want to remain as far away of hospitals as you can.

Because when facing devastation caused by any natural disaster you do what you can with the resources you are left with.  You can’t control anything that is happening around you, but you can control what you are feeling on the inside.

All I did was make sure I was giving myself the inner talk I needed to be able to survive the weeks and months to come.

Thanks for stopping by and keeping me company during this rough road towards wellness and healing.

 

 

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You Can Do This or That

Dear readers,  as a MG patient I get a lot of “you  can’t do this” or “you can’t do that” sort of speech more often than I should.  However, once in a while my ears turn deaf to all those assumptions.

Against to what other people may think they know about me and my MG, I decided to plan a holiday in New York and visit my daughter in school, where I would do this and that.

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I had a schedule with my six year old and was not going to deviate from it.

Consequently my journey began.

I  walked blocks and blocks on Amsterdam to buy Hungarian pastries and find about how they’re done and what’s in them.  I returned to the shop twice and saw everything in between.

I walked the Central Park Zoo and made sure he saw everything there was to see.  Actually I compromised for my family’s mental stability, my goal was Bronx Zoo.  Didn’t get around this time, but sure am next time.

I hopped on the Metro to the Museum and sat on a bench with my friend Teddy Roosevelt chatting about why was he interested in Puerto Rico after winning the Hispanic War back at the end of the 19th century, and had a wonderful time with Ian digging some artifacts out of the sand.

Even though I am a very resilient person, I could have not done it without a little bit of help of a high dose a prednisone my neuro let me have while I was in NYC.   Now it’s time to get back to my day to day life and my prednisone needs to come down. I know I’ll miss having that little extra pump for my day, but vacations are the small pockets in life where you get to live with a little bit of fantasy going on and sometimes we just need to have that in our lives if even for a small amount of time.

Meanwhile my friends,  let go even if for a little bit, be kind to yourself and others and make me company on my many journeys  to wellness.  Thanks for stopping by.

See you around fellow snowflakes.