Mind Over Body: My Choice!

Dear readers, all of us know by experience that living with a disability usually doesn’t produce joy or any sort of happiness. However, if we are to strive within our Myasthenia or any other form of chronic illness we would need to shift the gears of our thoughts.

What  does that mean?

via morgue file

photo image via morguefile

Well  I’ll just talk  about my experience, not in an ego centered way, but just telling you how I shifted my gears.  You know not all that works for one person makes a perfect fit for others and I’m not really into that either.  Some people think that their own choices are the miraculous solution for others and that’s not how it  works.

I’m  more about sharing what has worked for me and try to inspire others to look for their own thing. An autoimmune disease affects each person in different ways and forms. My personal objective is to share and create a space where you can try it out or just work something out that fits your needs.

Coming back to the topic at hand, after the necessary disclosure, when I first began dealing with the ups and downs of   living with Myasthenia to be honest  to the truth I only found disappointment, sadness,  isolation and a bit of anger all mixed in one big bottle.  For a while, I couldn’t even bring myself to talk about it.

My teaching career was over, I barely could take care of myself and  to top it all only my family and  close friends knew and understood my disease. To the rest of the world I looked perfectly normal.

It took me some time in a hospital bed to rethink all my situation.

I came to a crossroad where I would follow  the  path already  set in place or take another yet to be created.  One  where I would find joy in simple things in life.  Prior to that I really didn’t dig the whole gratitude thing, I would ask myself and what is it that I need to be grateful for?

However, there was a trick  to all this,  to be able to begin walking down the path of joy and gratitude, I would need to open up my heart and cultivate acceptance.   I would have to let go of patterns of negative thoughts that were ingrained in my spirit.  This written down sounds so spiritual and easy, but believe me it’s not. It’s actually excruciating and it takes a very long time.  It’s been more than thirteen years that I’ve been trying to achieve this each and every day since.

Once  in a while my bitterness shows up and I have to work myself through it. But, I say  to myself, “Hey, give me some slack,  I’m only human!” I don’t fight it off, I just receive  the emotion and make it part of who I am, the only thing different  is that I  keep on going and rediscover a place within me where I can find some peace and quiet to re- calibrate and move on.

Those who support you also make a huge difference in the outcome. Basically because when I’m not able to find that space within me they guide me to where it is. Reminding me all I have to be grateful for.

Positive and loving emotions do much more for me than negative and pessimistic ones.

Good vibes lift you up, while negative ones pull you down. Like everybody knows this, but it  easier said than felt.

Give it a try!!!!!  Your immune system  and soul will thank  you for it. Remember our bodies are just a small fraction of who we really are. Our mind can always control our body.  Our mind can’t take away our MG, but it can make our life so much better when we cultivate good things through it.  I hope you can take up my invite and begin some sort of healing process.

See you around and thanks for stopping by and remember be kind and compassionate to yourself.  Hasta pronto!

 

 

Stress & MG: Life in a bubble

Dear readers, all of us now that life is stressful.  So, how can we actually live without stress.  The answer for that question is quite simple, WE CAN’T.

All of us sick or healthy deal each day with different amounts of stress.  Staying on the positive side,  I would say that stress will not affect us as much if and only if, we learn to mange it in a healthy way.

 

Living in a bubblevia morguefile

Gees, that sounds beautiful, but really some situations are darn difficult to manage nevertheless the ways and manners we cope with them.  For example, my  23 year old son tells me at two in the morning, the following,

(while I was  busy dealing with last minute decorations for  my soon to be five year old’s theme  birthday party, which was the next day. )

“Mom, since I want you to be part of the process, I have something to tell you,  I’m planning to get married like probably in August.”

“What are your thoughts?”

First, let me put the situation in perspective for you, he has one semester to go to complete his masters in psychology, they started dating last year, he can’t support himself, but his girlfriend and him want to move in together during the Summer, but her parents are very Catholic and they feel the necessity of her getting married before living together.

Well, I responded,

“I think this whole idea is a bad one”…., and I went on to tell him why I thought this idea was bad in general.  But, this post isn’t about my son’s lousy choices, it’s about how my and your quality of life is disrupted by stress.

Whoever thinks we can go on with our lives and not  deal with stress is out of his or her mind.  How in the world can situations like these or any you guys might be going through not be stressful?

We are going to be stressed for Pete’s sake, if not we would be living in a bubble.  Remember that John Travolta movie, “Boy in a Bubble”?   My dear friends it’s nearly impossible for us to live this way.

On the other hand, stress is one a key element in our setbacks and flares.  Nobody right in this moment have any doubt, that I’m dealing with a major flare in my condition.  While I sit in my desk writing , I’m waiting for my neuro’s call because all my symptoms are up and front.  The night of his announcement, I needed to go on Atrovent due to severe coughing that came while I was sleeping, my legs are weak, and my voice is no where to be found.

The big question lurking in my mind is, how can I deal with this shitty situation without getting sick?

Getting some counseling,

Talking to someone,  or

Letting it go.

Honestly I don’t know.

But hey, nobody said life was easy and we know this better that any healthy person. There will be moments in my life  filled with grief, anxiety and so much more, nevertheless even if I’m tired most of the time, I need to pull through because I’m  a strong person and I don’t want to live in a bubble and I know neither do you.

Thanks for joining me on my path to wellness, talk to you soon.

MG & Weight Loss: An ongoing issue

Dear readers as you know we deal with a lot of mobility issues. I’m not going to get into the reasons of why this happens because basically all of us know that when weakness strikes we need to get some rest and that can go on for days and even weeks.

Which takes us to our next point, weight gain.

MG and weight loss.jpg

We struggle with our weight.  If we gain those extra dreaded pounds it’s going to be tough to move around and this makes us go in circles for what seems a very long time.

 

I had gotten to a decent point after May last year, and my weight was down to 148, which for me was great. Then, after my last flare and hospital stay in December it went all the way up to 175.

Gee, was I frustrated.

My family told me,

“Don’t STRESS yourself, things will work out.”

“You’ll see in no time you are going to loose that extra weight.”

I thought to myself,  “Yeap, those 28 extra pounds are going to just melt away as I do my high energy power exercises!!!!!”

If they wanted to make me feel better they did it, but the high only lasted a couple of minutes. Nobody was talking about how I was going to get there.

To make my loooooong story, very short.  I began my depending on how I wake up in the morning weight loss program.  I simply started to count my calories and since all of us know exercise is almost out of the question some days.  The days I get up feeling strong I exercise around the house doing household chores and eat very carefully.

Yesterday I weighed myself after a week, and discovered that I had only shed 2.2 pounds. I was disappointed because I thought that I had lost more.  Which lead me to a war with half of dozen cupcakes I had bought for “Ian” at the supermarket.

All of a sudden I craved sweets and totally forgot about the low-fat yogurt I was supposed to eat.

After an afternoon on an emotional merry go round ride I finally curled  up in bed and read that shedding 2.2 pounds was more than good in a week.

Which made me feel good about myself, which took me back to the cupcake I had eaten earlier.  The good news is that I had eaten only one out of six, the rest are still safe in my refrigerator.  Ian will probably have some this afternoon when he gets back from school and the rest will be given away.

My archenemy strawberry frosted vanilla cupcake had won the first battle, but I won the following when I chose not to eat the rest of them.

So, my dear friends reaching that point where wellness surrounds us is tough, but we need to remember that our bodies our weak, but our will is strong.  And that is precisely what keeps us moving forward.

Plan your life because it’s yours and only yours,  and find meaning and purpose in each day reaching out to others. When we give it a try, it’s pretty amazing.

I invite you to come along on my quest for wellness not only of my body, but most importantly of my soul

 

 

 

 

 

Getting It Together

I will appreciate if you come around  the 13th of February for a visit.  I hope the information that will published here meets your expectations.

Also, I will love to hear your voices.

If you have a story to tell about how you are able to manage your Myasthenia  and stay healthy (relatively speaking) and positive, you are invited to leave me a message or email me at myastheniafitness@gmail.com.

This date marks my wedding anniversary and also it was before my 20th anniversary (eight years ago),  when I was finally diagnosed with Myasthenia Gravis after almost two years of trial and error and many, many visits not only to various doctors, but also to the hospital.