Dear readers, as an MG patient you just accept and learn to deal with flares. I’m not saying they are easy, but it’s just something we do. We know the ropes of Myashtenia. However, sometimes we have to go through “what the ?????” moments. Feel free to fill in the interrogative signs with whatever you want.
As Ian would say, “what the fart” is going on????
You are probably asking yourself, “Ahhh so, what is that thing of the Brazilian connection all about Missy, get to the point”.
Well my dear friends to get there, I’m going to have to go back a little in time.
On Friday I visited my neumologist because I got banged with the elephant on my chest syndrome we all know to well. I was going through the tests for pulmonary weakness, when the technician decided to share some interesting facts about Myasthenia.
This is how it went down,
“Oh, so since when do you know you have Myasthenia?”
(Me barely breathing during my tests)
“Hum, did you visit Brazil or any other exotic destination?”
I felt like having a Sponge Bob moment, like when his eyeballs just fall off his face.
Me gasping, “MG is autoimmune.”
“No, no… I studied this disease in school ( I would like to know which, to write a really bad review) it has to do with a virus. Guillain-Barre, Myasthenia, and ALS, ALL are the same thing. Most of the people who get them have been down to Brazil.”
In a “AS A MATTER OF A FACT” tone of voice.
At this point, I thanked God and the Universe that my husband was outside of the office waiting for the tests to be finished, and not inside with me because he would have had a fit. When I told my children they were extremely aggravated and angry about the incident.
I only ask myself, how much do we really need to be put up with?
If people don’t know, I don’t care a snicker, but when my healthcare providers don’t know, it’s just plain terrible. My neumologist is a caring and kind human being, but he should LOOK into what his respiratory technicians are putting his patients through.
She needs to go back to school and learn her business because she doesn’t deal with peanuts, but people.
The horrific thing is that, the Brazilian connection wasn’t even the worst thing. While performing my routine tests, she paid her bills by phone, searched it continuously and even took a bathroom break. I think I heard her fart in the doorway.
So, my dear friends there you have it. Flares aren’t the worst things that happen to us, the very worst are flares and incompetency, insensibility and ignorance all mixed up together.
Thanks for stopping by and remember to be kind to yourself and others. Keep me company of this treacherous rode towards wellness of the body and soul.