Our Enabled Spirits

Dear readers, I experienced the blessing of walking through the New York Botanical Gardens a few days ago. Now, don’t get the wrong impression about the walking part, I utilized the tram and walked just a bit. Yet, I walked in spirit through it all.

I am so grateful my spirit is enabled within my disabled body.

I truly believe all living species have a collective memory and we all breath the same air, and being in the midst of such beautiful surroundings I felt as if I could brush the sky with the tips of my fingers as the century old trees that live there and me became one.

When I was catching my breath sitting on a bench in the Rock Garden, I couldn’t stop thinking about Heaven.

People depending on their experiences have different perceptions on what they think Heaven may or may not look like. Since, I’m a generational gardener, for me it’s all in the soil. So, for a brief moment I had my little piece of Heaven.

With a grateful heart I closed my eyes and made a silent prayer for myself, asking God to give me guidance so I can be my best version, never taking advantage of anything or anyone to someday live in my eternal garden in peace with the life I lived in this wonderful world.

Thanks for stopping by, be gentle with yourself and others. Gentle goes a very long way.

Hasta pronto!

The Power Within

Dear readers, finding strength to keep our commitments is no easy task.  We plan, prepare and do our best to follow through and reach the goals we have set for ourselves. Many times failing along the way, and letting discouragement hit us fast and furiously.

One of the worst things we experience is discouragement, it just doesn’t let us move forward. It’s like a pond of moving sand that sucks us in with no way out. The thing is that we have the power within ourselves to change all of this.

We can reverse discouragement to encouragement just by changing our inner dialogues and setting an intention.  Remaining encouraged when dealing with body image issues related to weight gain is tricky.

Weight gain is troublesome for everyone who relies heavily on steroids,  myself being one of them.   Discouragement is a central part of how I feel when I fail to follow through on my well meant  plan of not eating at night.  Night munchies are difficult to control and if you add the element of the appetite you work up not only because usually steroids do that to you, but also because it causes yet another problematic situation, insomnia. So here we have yet another pill with multiple side effects.  All those calories consumed during the night don’t help at all if I’m trying to manage my weight.

journey

This been said, let’s talk about my journeys.

I’ve come up with an alternative plan on how to minimize the effects of mindless nocturnal munchies.  For three days in a row I begin something I call “My Three Day Journey”, during these three days I practice intermittent fasting, mindful eating and write my intention for the day in the morning and a highlight of that same day when it’s over practicing gratitude.   I use my bullet journal for this, so I can go back and read highlights from prior days that inspire me.

Very early  in the morning I set an intention of not eating nothing past 6:00 or 7:00 pm, only tea.  My mind is already telling my body that we will not be eating pass that hour, so I try to eat a light dinner prior to that hour and take 100 steps afterwards to boost my digestion.  These steps usually are around my house and not in a hurry, I walk in a mindful centered way.  If you are using a walking cane it’s fine, you just go little by little.  These  little things add up and make a huge difference on the outcome of how you feel later on throughout the days to come.

With the passing of each day you’ll begin to feel encouraged about your progress.  To feel better about yourself upon the completion of your journey.

After each  journey I’ve taken,  I become a little bit more aware each time about the importance of taking good care of my body even it it’s a little impaired.  Affirming my acceptance of loving myself just as I am makes it less a battlefront and more an exercise of compassion towards myself.  The beauty of my journeys is that I decide when I want to begin another one.

It’s great to wake up in the morning and not feel guilty about all the wrong things I ate the prior night, and to regain control of my weight.  These small changes have added up to significant weight loss during a span of time for me, and by changing them on a conscious level the pounds remain off.

Hope this helped or inspired someone trying to conquer MG or any other illness little by little.  Happy travels to anyone who decides to take on his or her own three day journey.  The important thing is to customize your journey, you are your best advocate and don’t forget to talk to your doctor about any small or big steps you plan to take.

See you around the corner.  Hasta pronto!

We Will Overcome

Dear readers, when Hurricane Maria hammered Puerto Rico, things looked dim and my thoughts constantly drifted back and forth.

37316978_1158306820977776_3178352940947603456_o

One of the experiences that took a toll on my mental health was when I stood in line with my husband outside a supermarket, we frequently go to, and waited for instructions on how we were going to purchase some groceries we needed at home.  Part of the process was to write it down on a piece of paper, and then when my turn came I was to tell her how many of each, and she would tell us if the item we wanted was available.  That shook me to my core! Groceries that I had always purchased became a commodity, worry stormed me as I thought about my six-year-old at home.

Was food scarce? Was this going to be how things were going to be from now on? I felt so overwhelmed that I thought I was going to be sick.

News about the ports on the island, the gasoline shortage, the destruction of our communication infrastructure, and electrical grid stormed us day and night. At some point, I didn’t know if my husband’s portable radio was a blessing or a curse.

Nothing that was happening prevented the Sun to come down and then come shining once again after the night. The planet continued its spin and acceptance of the events came with it.

I even came used to  the constant sound of  of the Army combat helicopters blades as they flew all day  through our mountainside working on a nearby dam. My husband served in the Army Reserve so for him it wasn’t a thing, however for me it was.  I could only think about people who live in a combat zone, even if in our case they were here for a humanitarian reason.

The important thing was that we were fine, maybe without the commodities we usually enjoyed, but we had enough.  Our house was still standing and we learned to use the resources we had at hand, and when things eventually returned to normalcy I’ve made sure to practice gratitude each day of my life, even if life does bring me storms.

Living with Myasthenia Gravis is one of those storms, and even if it’s  tidal waves come storming into my everyday life without mercy every now and then, leaving me frightened about my future, I  face it with courage, looking at it straight in the eye and saying to myself, “I will overcome this.”

And I do my dear friend, and you will too.  Never loosing sight of the important things in life because that’s whats going to pull us through all our storms.

Thanks for stopping by and keeping me company on this treacherous road to wellness and remember always be kind to yourself and others.

 

 

MG Survival Guide

Dear readers,  summer in New York came and went, school began and I got caught in my day to day life routine until September 20th.

September 20th was the day that a category five hurricane hit Puerto Rico, becoming one of the deadliest storms in modern history.

All of you know as a fact that stress is an overall factor that causes exacerbation of our symptoms.

I asked myself,  how do I remain calm in the midst of a category 5 hurricane?

After watching the last forecast report at five where the meteorologist stated that it wasn’t about securing your home anymore, it was about saving  lives.

file000346334958 (1)

WOW!!!!

Still I was able to remain calm, trying my best not to stress myself because I knew I was going to feel sick.  The dull feeling that creeps up on me each time my weakness decides to show up was calling  in absent.

As Maria crossed our Island  I prayed.  Reaching out to my faith helped me overcome the moment.  All I wanted was it to be over, little did I know that it would remain with its furious winds and waterfall for more than twenty-five hours.  When at last it subdued on the night between the 21st and 22nd I was grateful.

If your waiting for things I did or bought in preparation, sorry to disappoint you but this post isn’t about this.  My survival guide is quite simple, just have enough medications, have a way to contact your neurologist and remain as calm as you can because you definitely want to remain as far away of hospitals as you can.

Because when facing devastation caused by any natural disaster you do what you can with the resources you are left with.  You can’t control anything that is happening around you, but you can control what you are feeling on the inside.

All I did was make sure I was giving myself the inner talk I needed to be able to survive the weeks and months to come.

Thanks for stopping by and keeping me company during this rough road towards wellness and healing.