Dear readers, as a MG patient I get a lot of “you can’t do this” or “you can’t do that” sort of speech more often than I should. However, once in a while my ears turn deaf to all those assumptions.
Against to what other people may think they know about me and my MG, I decided to plan a holiday in New York and visit my daughter in school, where I would do this and that.
I had a schedule with my six year old and was not going to deviate from it.
Consequently my journey began.
I walked blocks and blocks on Amsterdam to buy Hungarian pastries and find about how they’re done and what’s in them. I returned to the shop twice and saw everything in between.
I walked the Central Park Zoo and made sure he saw everything there was to see. Actually I compromised for my family’s mental stability, my goal was Bronx Zoo. Didn’t get around this time, but sure am next time.
I hopped on the Metro to the Museum and sat on a bench with my friend Teddy Roosevelt chatting about why was he interested in Puerto Rico after winning the Hispanic War back at the end of the 19th century, and had a wonderful time with Ian digging some artifacts out of the sand.
Even though I am a very resilient person, I could have not done it without a little bit of help of a high dose a prednisone my neuro let me have while I was in NYC. Now it’s time to get back to my day to day life and my prednisone needs to come down. I know I’ll miss having that little extra pump for my day, but vacations are the small pockets in life where you get to live with a little bit of fantasy going on and sometimes we just need to have that in our lives if even for a small amount of time.
Meanwhile my friends, let go even if for a little bit, be kind to yourself and others and make me company on my many journeys to wellness. Thanks for stopping by.
See you around fellow snowflakes.