The Power Within

Dear readers, finding strength to keep our commitments is no easy task.  We plan, prepare and do our best to follow through and reach the goals we have set for ourselves. Many times failing along the way, and letting discouragement hit us fast and furiously.

One of the worst things we experience is discouragement, it just doesn’t let us move forward. It’s like a pond of moving sand that sucks us in with no way out. The thing is that we have the power within ourselves to change all of this.

We can reverse discouragement to encouragement just by changing our inner dialogues and setting an intention.  Remaining encouraged when dealing with body image issues related to weight gain is tricky.

Weight gain is troublesome for everyone who relies heavily on steroids,  myself being one of them.   Discouragement is a central part of how I feel when I fail to follow through on my well meant  plan of not eating at night.  Night munchies are difficult to control and if you add the element of the appetite you work up not only because usually steroids do that to you, but also because it causes yet another problematic situation, insomnia. So here we have yet another pill with multiple side effects.  All those calories consumed during the night don’t help at all if I’m trying to manage my weight.

journey

This been said, let’s talk about my journeys.

I’ve come up with an alternative plan on how to minimize the effects of mindless nocturnal munchies.  For three days in a row I begin something I call “My Three Day Journey”, during these three days I practice intermittent fasting, mindful eating and write my intention for the day in the morning and a highlight of that same day when it’s over practicing gratitude.   I use my bullet journal for this, so I can go back and read highlights from prior days that inspire me.

Very early  in the morning I set an intention of not eating nothing past 6:00 or 7:00 pm, only tea.  My mind is already telling my body that we will not be eating pass that hour, so I try to eat a light dinner prior to that hour and take 100 steps afterwards to boost my digestion.  These steps usually are around my house and not in a hurry, I walk in a mindful centered way.  If you are using a walking cane it’s fine, you just go little by little.  These  little things add up and make a huge difference on the outcome of how you feel later on throughout the days to come.

With the passing of each day you’ll begin to feel encouraged about your progress.  To feel better about yourself upon the completion of your journey.

After each  journey I’ve taken,  I become a little bit more aware each time about the importance of taking good care of my body even it it’s a little impaired.  Affirming my acceptance of loving myself just as I am makes it less a battlefront and more an exercise of compassion towards myself.  The beauty of my journeys is that I decide when I want to begin another one.

It’s great to wake up in the morning and not feel guilty about all the wrong things I ate the prior night, and to regain control of my weight.  These small changes have added up to significant weight loss during a span of time for me, and by changing them on a conscious level the pounds remain off.

Hope this helped or inspired someone trying to conquer MG or any other illness little by little.  Happy travels to anyone who decides to take on his or her own three day journey.  The important thing is to customize your journey, you are your best advocate and don’t forget to talk to your doctor about any small or big steps you plan to take.

See you around the corner.  Hasta pronto!

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You Can Do This or That

Dear readers,  as a MG patient I get a lot of “you  can’t do this” or “you can’t do that” sort of speech more often than I should.  However, once in a while my ears turn deaf to all those assumptions.

Against to what other people may think they know about me and my MG, I decided to plan a holiday in New York and visit my daughter in school, where I would do this and that.

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I had a schedule with my six year old and was not going to deviate from it.

Consequently my journey began.

I  walked blocks and blocks on Amsterdam to buy Hungarian pastries and find about how they’re done and what’s in them.  I returned to the shop twice and saw everything in between.

I walked the Central Park Zoo and made sure he saw everything there was to see.  Actually I compromised for my family’s mental stability, my goal was Bronx Zoo.  Didn’t get around this time, but sure am next time.

I hopped on the Metro to the Museum and sat on a bench with my friend Teddy Roosevelt chatting about why was he interested in Puerto Rico after winning the Hispanic War back at the end of the 19th century, and had a wonderful time with Ian digging some artifacts out of the sand.

Even though I am a very resilient person, I could have not done it without a little bit of help of a high dose a prednisone my neuro let me have while I was in NYC.   Now it’s time to get back to my day to day life and my prednisone needs to come down. I know I’ll miss having that little extra pump for my day, but vacations are the small pockets in life where you get to live with a little bit of fantasy going on and sometimes we just need to have that in our lives if even for a small amount of time.

Meanwhile my friends,  let go even if for a little bit, be kind to yourself and others and make me company on my many journeys  to wellness.  Thanks for stopping by.

See you around fellow snowflakes.

 

Day 2: Dealing with an upset tummy 

Dear readers, all of us know how prednison can spike our craves to eat “anything” that has SUGAR. And not happy about that I have the situation that I developed Diabetes because of IT.

So, yesterday I felt the urge to dip in to some cake frusting in the fridge. Super bad idea!

Which lead me to one of the worst tummy aches I’ve ever had. 

But, I’m still hanging in there. 

Day 3 is all about getting some pampering. 

Hoping everyone is feeling good.

And, don’t forget to make me company on my trip to wellness.