MG Survival Guide

Dear readers,  summer in New York came and went, school began and I got caught in my day to day life routine until September 20th.

September 20th was the day that a category five hurricane hit Puerto Rico, becoming one of the deadliest storms in modern history.

All of you know as a fact that stress is an overall factor that causes exacerbation of our symptoms.

I asked myself,  how do I remain calm in the midst of a category 5 hurricane?

After watching the last forecast report at five where the meteorologist stated that it wasn’t about securing your home anymore, it was about saving  lives.

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WOW!!!!

Still I was able to remain calm, trying my best not to stress myself because I knew I was going to feel sick.  The dull feeling that creeps up on me each time my weakness decides to show up was calling  in absent.

As Maria crossed our Island  I prayed.  Reaching out to my faith helped me overcome the moment.  All I wanted was it to be over, little did I know that it would remain with its furious winds and waterfall for more than twenty-five hours.  When at last it subdued on the night between the 21st and 22nd I was grateful.

If your waiting for things I did or bought in preparation, sorry to disappoint you but this post isn’t about this.  My survival guide is quite simple, just have enough medications, have a way to contact your neurologist and remain as calm as you can because you definitely want to remain as far away of hospitals as you can.

Because when facing devastation caused by any natural disaster you do what you can with the resources you are left with.  You can’t control anything that is happening around you, but you can control what you are feeling on the inside.

All I did was make sure I was giving myself the inner talk I needed to be able to survive the weeks and months to come.

Thanks for stopping by and keeping me company during this rough road towards wellness and healing.

 

 

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Stress & MG: Life in a bubble

Dear readers, all of us now that life is stressful.  So, how can we actually live without stress.  The answer for that question is quite simple, WE CAN’T.

All of us sick or healthy deal each day with different amounts of stress.  Staying on the positive side,  I would say that stress will not affect us as much if and only if, we learn to mange it in a healthy way.

 

Living in a bubblevia morguefile

Gees, that sounds beautiful, but really some situations are darn difficult to manage nevertheless the ways and manners we cope with them.  For example, my  23 year old son tells me at two in the morning, the following,

(while I was  busy dealing with last minute decorations for  my soon to be five year old’s theme  birthday party, which was the next day. )

“Mom, since I want you to be part of the process, I have something to tell you,  I’m planning to get married like probably in August.”

“What are your thoughts?”

First, let me put the situation in perspective for you, he has one semester to go to complete his masters in psychology, they started dating last year, he can’t support himself, but his girlfriend and him want to move in together during the Summer, but her parents are very Catholic and they feel the necessity of her getting married before living together.

Well, I responded,

“I think this whole idea is a bad one”…., and I went on to tell him why I thought this idea was bad in general.  But, this post isn’t about my son’s lousy choices, it’s about how my and your quality of life is disrupted by stress.

Whoever thinks we can go on with our lives and not  deal with stress is out of his or her mind.  How in the world can situations like these or any you guys might be going through not be stressful?

We are going to be stressed for Pete’s sake, if not we would be living in a bubble.  Remember that John Travolta movie, “Boy in a Bubble”?   My dear friends it’s nearly impossible for us to live this way.

On the other hand, stress is one a key element in our setbacks and flares.  Nobody right in this moment have any doubt, that I’m dealing with a major flare in my condition.  While I sit in my desk writing , I’m waiting for my neuro’s call because all my symptoms are up and front.  The night of his announcement, I needed to go on Atrovent due to severe coughing that came while I was sleeping, my legs are weak, and my voice is no where to be found.

The big question lurking in my mind is, how can I deal with this shitty situation without getting sick?

Getting some counseling,

Talking to someone,  or

Letting it go.

Honestly I don’t know.

But hey, nobody said life was easy and we know this better that any healthy person. There will be moments in my life  filled with grief, anxiety and so much more, nevertheless even if I’m tired most of the time, I need to pull through because I’m  a strong person and I don’t want to live in a bubble and I know neither do you.

Thanks for joining me on my path to wellness, talk to you soon.