Birds Just Don’t Fly

Dear readers, I began this blog about a year ago after a fellow blogger Cathy Chester, who is a ferocious advocate for MS, suggested it during a twitter conversation.

Creating awareness should be our number one priority and  also creating spaces where we can share what it is to live with MG with others who go through the same things on a daily basis.

Myasthenia isn’t called the snowflake  disease for nothing, we all are different, but at the same time  share common denominators. As so many other immune diseases.

We all aspire feeling well enough to complete tasks as simple as showering, walking, or eating. These simple day to day tasks are colossal for us sometimes and not only take away from our quality of life, but also from our very core.

We struggle each day with our feelings and emotions trying to find sense in our lives and figuring out how not to just give up.

myastheniafitness.jpg

It took me some time, but I think that finally I’ve found a glimpse on  my way in this tumultuous road of wellness.  Some of us tend to think that wellness is the same thing as health, and it’s not.

I ask myself, how can a person who is not healthy achieve a state of wellness that can overcome anything she or he has to endure?

To be honest, I don’t know.  I’m trying to discover the answer to this question through my journal,  jotting down how I feel along my journeys.

Each afternoon a flock of white birds fly above my yard and they are perfectly synchronized nevertheless, their perfection wasn’t achieved without at least falling down a couple of times and finding their exact place in the flock.

So my friends, I’m not going to find my purpose or be well without a bit of pain each time I fall.  However, what brings me hope is believing that I will be able to fly at some point and find a perfect place for myself in this thing called life.

Thanks for stopping by and reading my blog and making me company in my journey through life.

See you around.

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Facing Our Share of Loneliness

Dear readers,  regardless to say and I’m sure all of you know that life brings hundreds of sounds that people, animals or things make into our lives.  However,  I’ve lived  through days surrounded by these sounds and at the same time I’ve felt a compelling sense of loneliness.

We all face our share of loneliness.

The ironic part is that like robots  we respond, interact and even manage to laugh  about or with those who surround us. However, we feel lonely in a room full of people.

Since I have a big family, I have a busy phone and kitchen. My husband and myself satellite around our kitchen and phones. I listen to endless conversations and always try to be a good listener and to an extent try to fix things that I feel are wrong if I can. In other words, I try to make like comfortable for all of them. Fill in voids with my voice and cheer them with my laughter, comfort and hug them all as much as I can. Nevertheless, I’m trapped in a lonely world sometimes.

Lonely Path

Living with MG is a lonely path.

It would be nice to listen to someone ask me not if I’m well or not, but to listen to,

“How are you feeling?” But for real.  Actually an outlet to let go of all my steam,  to bear my soul, or to spill it all out.

My loneliness is not but a stream of thoughts about my life and how it’s changed during the past ten years.

My loneliness is a fair cry of a bird that wants to spread her wings and fly to the vast horizons.

Don’t get me wrong I know that I’m loved and cherished, and  always have been.  That’s not something I’m enjoying now because I’m ill, but it’s been part of my life ever since he became part of it as well. However, that doesn’t take away how I feel.

I’ve come to terms with the fact that my loneliness is mine to face only.

So my dear friends, next time the sun comes up with its majestic sunrise and accompanying sounds I will move on trying to cope with my loneliness and making the best of it.  Maybe next time around  I’ll find an opportunity to talk to someone of things that are important at least to me.

Don’t forget to be kind to yourself and to others.

Thanks for stopping by to read about life with Myasthenia and making me company on my journey to wellness.  See you around.

Back to Day One

Dear readers, trapped in the nuisance of dieting I’ve lost track of the days.

For starters, my husband got on the dieting train and he’s done much better than me.

I’ve mostly been haunted by PMS.  I’m still wondering why in the heck am I still getting periods at my age.  I will be more than happy when my period goes away forever.

Now getting back on track is going to take some willpower.

cheese

via morguefile

For me it’s all about the cheese.  I love to eat cheese!

As I write  this post some cheese and crackers are laughing at me.  Teasing me, luring me into just taking a bite.  They  know I’m not suppose to snack on them.  However, my grandma would always say, “El que rie ultimo, rie mejor” which means thee who laughs at the end, laughs with more joy.

So, if I were the cheese that’s in the refrigerator and the crackers in the pantry, I would be extremely quiet because I could use some carbohydrates right now.

Which leads us to the most important part of this all.

Tomorrow I’m at Day 1 all over again.

And this time I intend to go straight to Day 10 without hesitation. Why Day 10?  Well, because those first ten days are crucial to staying on track.  My husband already is feeling the benefits of dieting, his size 36 pants need a tighter belt for fitting.

Finally I just need to add one word to this, FOCUS.

It has to become my mantra for pulling this off.  Each time temptation comes around the corner, I need to repeat FOCUS.

FOCUS on feeling better,

FOCUS on walking better,

FOCUS on living better, and so much more.

And don’t forget to do something that makes someone’s day better;  make me company on my way to wellness; and, repeat my mantra FOCUS.

 

 

 

Day 4: The Pasta Daze

Dear readers, these past few days have been challenging.

I’ve felt like a character of Poe’s  story “The Tell Tale Heart”, but instead of a heartbeat it’s more like a screaming cinnamon bagel that’s calling me.

I’m holding my own (if you don’t count my midnight bagel crime) or my cravings for some Pizza Hut pasta. Yogurts and salads will have to do.

  • Two things are keeping me motivated: one, my husband who is dieting with me, and; two, I don’t want mobility issues this coming Christmas.

So, I should place next to the pasta a picture of my walking cane, as a reminder to which way I want to go.

Remember, be kind to yourself and make me some company on my road to wellness.

MG Diet: Getting Back To Where I Was

Dear readers, it’s not about looking young (good luck with that), it’s about being able to walk. So, today is a great day to begin getting there. 

Day 1: so far, so good.

Not bad at all, Rosemary & Olive Oil Flatbread, veggies and some cilantro with a tiny stick of Sargento cheese.

Now desert as an issue if you live with a 5- year old. 

Let’s walk our way to wellness together.